{"release":"2026.10.0","licence":"CC BY 4.0","attribution":"The Alliance for Cruelty Free Science and savethedogs.uk","resource":{"id":"uk-cystic-fibrosis-registry","name":"UK Cystic Fibrosis Registry","short_names":["UK CF Registry"],"custodian":"Cystic Fibrosis Trust","countries":["GB"],"categories":["registries"],"description":"Data on over 99% of people with cystic fibrosis in the UK.","data_types":["registry-records"],"population_groups":["patients","rare-disease","children"],"keywords":["cystic fibrosis","lung disease","respiratory","rare disease"],"access_level":"application","access_route":"Data request to the Cystic Fibrosis Trust.","eligibility":"Researchers with appropriate approvals.","cost":"varies","url":"https://www.cysticfibrosis.org.uk/the-work-we-do/uk-cf-registry","replacement_relevance":"Human treatment outcome data for a genetic disease often studied in animal models.","status":"active","last_verified":null,"verified_by":"","source_note":"UK Human Data Resources for Research (Oct 2026)."}}